Brains in dialogue on genetic testing
| Datum: | 28 jan 2010 tot 29 jan 2010 |
| Tijd: | 09:00 tot 18:00 uur |
| Locatie: | Triest, Italy |
In recent years genetic research has lead to the development of hundreds of genetic tests which are now easily accessible to healthy individuals who want to find out whether or not they will develop a certain disorder. An increasing number of these tests are also available for main neurodegenerative diseases, like Alzheimer, Parkinson and Huntington, which are still incurable. But how reliable are these tests and what type of information are they offering? Do they help people to take decisions about their life? And who should be notified of the results?
Such controversial issues and many more will be addressed during the second bid-workshop brains in dialogue on genetic testing, organised in collaboration with Prof Gasparini of IRCCS Burlo and Trieste University, which will take place on 28-29 January 2010 in Trieste, Italy.
Scientists, clinicians, lawyers, philosophers, sociologists, journalists and other stakeholders will gather to discuss the state of the art of genetic testing for main neurodegenerative diseases and the ethical, legal and social implications. Together with patients, delegates of patients’ organizations and experts in genetic counselling we will discuss the impact of genetic tests for incurable diseases like Alzheimer, Parkinson and Huntington. We will consider the situation at the European level, comparing the public perception in the different countries and analyzing the existing recommendations.
A combination of talks and facilitated discussions will be used to foster a true multidirectional dialogue and help stakeholders find a common language.
Preliminary programme and more information on the workshop